no more tyg

zofran, marinol, and phenergan were some of our best friends these past two weeks.

First week, I did fairly well on Tigecycline (often nicknamed "tyg" in the lyme community). The nausea was well managed. 

But the second week, I would get hit HARD during and after my evening doses. A good deal of sitting in the dark, gagging and heaving with my designated "barf bowl."  Running to and fro the bathroom isn't really an option. And I don't actually throw up. Just constantly feel like I'm about to. So I have a bowl. Just in case :)

Symptom-wise, I had a big flare of bone and joint pain and severe pain and pressure in my head. Poor balance with some falls, bumping into door frames, etc. Strange cognitive states. Seizure activity that we were thankfully able to control quickly. Most of those symptoms weren't terrible, but the nausea is really what debilitated me.

A dear friend came over in the midst of all this and as always, she was a great an encouragement.

As of last night, I am DONE with Tyg!!!. I feel so ummm...victorious. and RELIEVED.

Thank You Lord, for protecting me and helping me get through 3 cycles of Tyg. and for providing Spencer with strength and wisdom to care for me and administer all of those doses. I couldn't have a better husband.

Now, to recover. today I'm feeling pretty rotten. needing to be quiet and rest. nauseous, achy and spacey, but in good spirits. Excited about begining a 2 week drug holiday :)

Spencer began another round of orals last Monday. Between working long hours at his job and his body being stressed by the die-off, he's been really weary. Hoping he'll begin to feel better as the antibiotics do their job.

Please pray for him - that the treatment would continue to help and that he would get the rest he needs. Once I'm back on oral meds, things will be a lot less stressful and taxing for him. We're praying that my IV cycle in September will be my last.

Thanks to zofran, this evening we're going to splurge and eat gluten-free pizza made by my lovely mother. Yum!