On the rare days that I have the strength to actually do any chores, I usually try to tackle the dishwasher or hand-wash a few dishes. I'm still trying to recover from the 25 minutes I spent on Tuesday doing dishes. I wish I was kidding, but it is truly that taxing for me. In hindsight, I regret doing those dishes. Hardly made a dent in the huge pile, and I'm paying dearly for using spoons that I didn't have - essentially
We're both feeling like we're just sort of existing, trying to somehow get through each day, hoping and longing for some sort of improvement. We're both remaining fairly optimistic though, and talk often about, "when we've beaten Lyme, lets do _____" or "When I have more strength, wouldn't it be wonderful to go to ____ ?" or "I can't wait to be well so we can finally ____." Not ready to give up or allow this illness to completely consume our lives, but at the same time, we don't want to be foolish about it and need to be willing to make necessary changes if either of us gets too sick. Where is the balance?
I had my doctor appointment Monday. It went well. I am trying to type up a summary about the things we decided with my doctor, but I have been so incredibly drained this week and it isn't coming together very quickly. Just typing this out has been exhausting. Hopefully soon I'll be able to post an update.
8 comments:
You know what I do ... when I have something I want to type out that takes a while.
I start a new post. Then, I work on it for 5 minutes at the most. Later when I come back, I work on it again. Then again and then again. Soon it takes form as a wonderful post! :o)
good advice :)
that's what I do with my posts too... most of them take hours and days to complete, with lots of rests in between super short "typing sessions."
Just found your blog. Hang in there and may God give you both the strength (emotionally, physically and every way) to get through all of this. Myself, my husband and 2 girls have Lyme Disease. I am have been very sick for about 8 years and guess I've had Lyme for no idea how long. I believe I got it from my husband when we got married. He had several tick bites growing up but never had any symptoms (that he knew of). He was shocked when his Igenex test came back with 6 VERY POSITIVE bands a year ago. He is now learning that his hearing loss, fatigue, brain fog and many other odd ball symptoms were being caused my Lyme Disease. He's in his 9th month of treatment.
Soon after we were married I started having horrible headaches and dizziness. I am positive these were caused by Lyme. I was just diagnosed about 15 months ago, pretty much on my death bed. I am doing SO MUCH better now. Since both of our girls have Lyme, I'm sure I had it 12 years ago. I've been married for almost 19 years.
My husband keeps a blog at http://15minutesofdelusion.blogspot.com You can find my story there. Go back in the archives to last March or prior to that.
May the Lord bless you and give you strength beyond your own so you can make it through all of this.
I hear you sweetie. It's so hard to be okay with the house being a disaster. It's not a good feeling when you think you're meant to take care of your husband and hopefully future children, only to instead find yourselves in opposite positions than expected. Tim's doing things for me I thought he'd never have to do til we were 80!!
But as you know, God in his sovereignty has ordained this... and it is going to be okay. We are still under his hand, where he is in total and complete control.
I've had a super rough week too; these days I can't help but wonder if I'm getting increasingly worse. Still no doctor or rheumatologist to replace the ones I lost in just the past 6 mths. I hate that they both moved on so quickly within one another; almost as if they were sharing secrets and retreating from me!! ha ha, just kidding. Hard indeed!!!! I hope one of these days to get that all sorted out and also be tested for Lyme's. I'm reallyyyyyy starting to wonder. Especially with some odd health issues of Tim's. Hmmmphhhh.
Please know that you are very much prayed for, loved from a distance even though I've never met you, and I care so deeply what happens to you guys. Thanks for just updating whenever you have the strength.
Hugs & Prayers!!!
Hey, just wanted to let you know we are thinking of you guys and praying for you! I had this whole wonderful idea of coming to live close to you while Jamin is in boot camp so I could wash your dishes for you, but then I remembered that having three kids running around your house while I wash dishes probably wouldn't be the most restful thing, so know that I love you even as I leave your dishes unwashed :) Jamin and I were just looking at the movie coming out called Lymelight. Interesting. Looks like a dumb movie, but interesting that it deals with Lyme.
Thank you Melody for your comment. Made me cry actually.
(must be PMS)
Love you, Honey. Believing with you that God will see you both through this. His tender mercies really are new every morning.
Melody, thank you for following my blog. I just got on today and found you. I will pray for you and Spencer.
I'm so sorry you both are battling this.
Gentle prayers,
Lisa
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